The amazing Samaritans offer an invaluable listening service which helps sooooo many people. To show them and the world how fantastic they are, I am running a half-marathon in aid of them on 14th October 2018 🙂
Have you ever been asked what your favourite superpower would be? I have. I have actually been asked this a lot…maybe it’s because many people know that my ultimate dream is to become some-sort of pink-cloak wearing superhero 🙂
During 2018’s Dementia Action Week, I created five short videos on tips for people living with dementia and those who support them. The videos cover the difference between Alzheimer’s Disease and dementia, resources and support services and making your home dementia-friendly.
I was about 20 when I felt the full-force of supporting my mum. It wasn’t unexpected … in my late teens she used to call me a lot … some friends would comment “Is it your mum AGAIN?!” and yes it was.
She needed me. She needed to hear my voice, she needed my reassurance, my support and me to listen to her hourly struggles in order to decipher a world she has never truly felt part of.
It is with a really heavy heart when I say devastatingly, there is currently no cure or medical treatment for dementia and I often get asked why?
My heart could not go out further for someone who receives a diagnosis of a condition, and then is told that very little can be done to cure it or halt the progression.
Wow I’m a carer?! My immediate thought is that I’m going to use it as my new strapline. Actually on second thoughts I think I’ll go for carer/ superhero – I mean who doesn’t want to be a superhero after all 🙂
What is a carer?
I had personally never ever considered this title. My perception of a carer was for those people who supported the physical needs of others.
I’ve had one of those months where I’ve been fortunate enough to have some really in-depth conversations with people and I’ve learnt sooooo much. It really reinforces to me not to take everything on face-value and that no one really knows what goes on in someone’s life truly, especially without having conversations.
Apologies to start this with a feast full of negativity … but I look at a hospital visit that I experienced with my loved one with ill mental health this year as a particularly tough experience.
Being shouted and sworn at, told how horrible I was (for trying to help) and over 30 people in a busy waiting room staring at me was probably not one of my life highlights … and actually I understand it ALL!